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NIH Launches Web Portal for Access to Down Syndrome Registry
Healthcare Informatics: The National Institutes of Health (NIH) has launched a web portal for researchers, clinicians, and other professionals with a scientific interest in Down syndrome to access de-identified data from its Down syndrome registry.
The DS-Connect registry will aim to help approved professionals to plan clinical studies, recruit participants for clinical trials, and generate new research ideas using information gathered from the registry participants.
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